Mr C has been down the past few days. Waiting for his CRB to come through so he can start work, being skint and "having nothing to look forward to" is taking its toll. Thankfully, his health is remaining stable and his knee is back on the mend again.
There was a family friendly music event on Saturday, a benefit for Sophie Lancaster and a birthday bash for two of our friends. I thought it would be good for us to get out of the house and do something fun as a family but he wasn't in the mood for socialising and certainly not for socialising with people who were drinking. A lot of our friends were there and I'm sure he would have enjoyed it had he gone. I went with our five year old daughter instead who thoroughly enjoyed herself and it was nice for my partner to have some quality time with my son - they had a nice quiet evening in with a takeaway so everyone was happy. I still can't understand why he finds it impossible to go out and not drink. Almost every time I go out I don't drink or only have one or two drinks. He said last night that he is going to distance himself from all his friends that drink and find new ones - I can understand why he feels the need to do this. As an addict he removes himself from situations and groups of friends who take part in certain things...but I never imagined he would have to end strong friendships for the sake of alcohol.
I'm hearing about more and more people in the UK receiving Telaprevir, I'm still not sure if they are part of trials or have just been prescribed it but I'm hoping this means we are a step closer to Mr C getting another chance at beating Hep C once and for all.
I think I'm going to start putting a little bit of money away each week so I can save enough for us to go away for a couple of days. We're both in desperate need of a change of scenery and a break from all this. Even if it's just one night away in a cheap B&B somewhere. But with money being so tight, I guess I'll have to work some home economics magic!!
A day to day account of the ups and downs of living with a partner who has Hep C.
Monday, 27 February 2012
Friday, 24 February 2012
In Need Of a Break!
The past couple of days have been quite hard going. Yesterday I had a really bad day with my depression. Our finances are dire and it hit me that in a few days when the bills come out, I'll literally be pennyless. I've never, ever been so broke in my life and it's terrifying to say the least.
Mr C got a letter yesterday from the care home saying that although they were very impressed with him there had been another candidate who fulfilled their criteria a bit better but they'd be keeping his details on file for any upcoming jobs. We're still waiting on his CRB to come back so he can start the job he was offered. In the meantime, the other interview he was supposed to be having today has been pushed back a week. He's really hoping he might get that job as it's the 3rd time he's been called for an interview at this organisation and he got very good feedback from them each time. It's also twice as much money as the job he's been offered which would obviously be fantastic if he got it. He's still trying to stay positive and is eating healthy which helps. Other than the knee pain I mentioned before, he's doing well healthwise.
I'm going to have to keep an eye on him though as he's been gambling again which is worrying me. He used my bank card last week at the bookies and lost £120 of my money which meant after paying me back £100 of it, he was skint and couldn't pay me the £70 which he's started paying me every 2 weeks to pay back what he owes me and to contribute towards bills.
I really could do with a break away from it all as it's really starting to get me down!
Mr C got a letter yesterday from the care home saying that although they were very impressed with him there had been another candidate who fulfilled their criteria a bit better but they'd be keeping his details on file for any upcoming jobs. We're still waiting on his CRB to come back so he can start the job he was offered. In the meantime, the other interview he was supposed to be having today has been pushed back a week. He's really hoping he might get that job as it's the 3rd time he's been called for an interview at this organisation and he got very good feedback from them each time. It's also twice as much money as the job he's been offered which would obviously be fantastic if he got it. He's still trying to stay positive and is eating healthy which helps. Other than the knee pain I mentioned before, he's doing well healthwise.
I'm going to have to keep an eye on him though as he's been gambling again which is worrying me. He used my bank card last week at the bookies and lost £120 of my money which meant after paying me back £100 of it, he was skint and couldn't pay me the £70 which he's started paying me every 2 weeks to pay back what he owes me and to contribute towards bills.
I really could do with a break away from it all as it's really starting to get me down!
Wednesday, 22 February 2012
Rising Above It
Considering yesterdays mood, today hasn't been bad at all really. My partner has been in quite good spirits and is refusing to let the job situation get him down. The job interview he was supposed to be attending on Friday has been put back a week to the following Friday so even more sitting around waiting is on the cards! Other than his knee bothering him ( the doctor told him last year the cushiony bit inside his knee cap had worn away) he's been good healthwise.
I've heard rumours that some people in the UK are receiving Telaprevir at the moment and one is attending the same hospital as my partner does so fingers crossed there's some hope for a successful treatment after all!
I've heard rumours that some people in the UK are receiving Telaprevir at the moment and one is attending the same hospital as my partner does so fingers crossed there's some hope for a successful treatment after all!
Tuesday, 21 February 2012
Promises, Promises...
My partner had an interview yesterday at a local care home. He was very happy with the way it went and was under the impression the interviewers were quite impressed with him. They told him they'd ring before lunch today to let him know if he'd got the job or not. Well..they didn't ring. We're assuming that means he hasn't got the job but I get so made when people promise to ring or email and then don't bother. It's disgraceful to get peoples hopes ups and then disappoint them like that.
Mr C's positivity has taken a severe nose dive due to this. Not only that but he's been told by the other job that he can't start until his new CRB comes back (he had one done last March so they can see he's no risk, although I completely understand why they want to wait). Unfortunately, Mr C had it in his had that convictions were "spent" after 5 years but it turns out it's 10 years for sentences over 6 months - this now means that he has 2 "unspent" convictions; which could mean he's no chance of employment until 2014 when they will finally be "spent". You can imagine what kind of head space he's in right now. Things are more than a little strained and after a few days of finally starting to relax about our finances, I'm back to panicking again.
I'm not sure if it's anything to do with his Hep or not but my partner has had an upset stomach the past week, maybe a bit longer. I really hope he's not going to end up ill again. His stomach can be very problematic. He passes blood in huge amounts when he's going through a bad episode and it scares me half to death. In fact he spent Christmas Eve the year before last in hospital and I was stuck at home worried sick about him. Luckily he's not been passing blood this time, he just has very loose stools and a feeling of something pressing or weighing down on his lowere left side of his abdomen. Hopefully he'll go and get checked out at the doctors sometime this week.
Anyway, I got a bag of goodies from my best friend today - a belated birthday pressie! My birthday goody bag consisted of a huge box of Lily O'Briens chocolates and lots of pampering bath gels, body scub, body butter, bath bombs and face masks...so I'm going to have an hour of Me Time whilst my partner has some of his own in front of the TV!
Mr C's positivity has taken a severe nose dive due to this. Not only that but he's been told by the other job that he can't start until his new CRB comes back (he had one done last March so they can see he's no risk, although I completely understand why they want to wait). Unfortunately, Mr C had it in his had that convictions were "spent" after 5 years but it turns out it's 10 years for sentences over 6 months - this now means that he has 2 "unspent" convictions; which could mean he's no chance of employment until 2014 when they will finally be "spent". You can imagine what kind of head space he's in right now. Things are more than a little strained and after a few days of finally starting to relax about our finances, I'm back to panicking again.
I'm not sure if it's anything to do with his Hep or not but my partner has had an upset stomach the past week, maybe a bit longer. I really hope he's not going to end up ill again. His stomach can be very problematic. He passes blood in huge amounts when he's going through a bad episode and it scares me half to death. In fact he spent Christmas Eve the year before last in hospital and I was stuck at home worried sick about him. Luckily he's not been passing blood this time, he just has very loose stools and a feeling of something pressing or weighing down on his lowere left side of his abdomen. Hopefully he'll go and get checked out at the doctors sometime this week.
Anyway, I got a bag of goodies from my best friend today - a belated birthday pressie! My birthday goody bag consisted of a huge box of Lily O'Briens chocolates and lots of pampering bath gels, body scub, body butter, bath bombs and face masks...so I'm going to have an hour of Me Time whilst my partner has some of his own in front of the TV!
Monday, 20 February 2012
Just Another Manic Monday
Well, the weekend and the kids half term holiday are done. We had planned to do a lot of nice family things but none of us were really up to it. Hopefully next weekend we'll do something nice together to make up for it.
Mr C went for his interview at the care home today and he thinks it went very well. They told him they'd let him know by tomorrow lunchtime if he's got the job. Although he already has a concrete job offer, he would be happier with this job as it's a few minutes from our house so he'd save a fortune on travel expenses (the other job means catching 6 buses a day!).
The positivity on the job front has helped keep his spirits up no end. I don't think I've seen him this happy for such a sustained period of time before. I think he's really looking forward to getting out there and being himself again not just the guy with hep sat at home staring at the same four walls. He can't wait to be financially independant again too. I just hope his health holds outand he doesn't end up suffering with the Hep again. He did say today he's more aware now that he has to take extra good care of his body..plenty of water, decent sleep, light exercise, a very healthy diet and no alcohol.
It was my birthday on Saturday, I had a small glass of Cava to celebrate, no idea what to do with the rest of the bottle though! I think my partners biggest test this year will be next month at our first music "alldayer" of the year. If he can get through that without drinking or just having a couple of pints I'll know he's going to be alright.
If you saw ads on here recently, I started using google adsense but they disabled my account today for using the word shit in my blog. I find that a little ridiculous but there ya go. I thought it might be a nice idea to earn a little bit of money as I blogged - every little helps as they say - perhaps I'll use an alternative or maybe just leave the whole ad thing alone...
My partner has been using a Hep C online support group quite a bit recently and he's finding it very beneficial. Another user of the group who's from the UK was telling him how they're taking part in a treatment trial at the moment so hopefully we can get some more info on that and see if Mr C can jump onboard something similar!
Time for an early night, so it's bye for now
Mr C went for his interview at the care home today and he thinks it went very well. They told him they'd let him know by tomorrow lunchtime if he's got the job. Although he already has a concrete job offer, he would be happier with this job as it's a few minutes from our house so he'd save a fortune on travel expenses (the other job means catching 6 buses a day!).
The positivity on the job front has helped keep his spirits up no end. I don't think I've seen him this happy for such a sustained period of time before. I think he's really looking forward to getting out there and being himself again not just the guy with hep sat at home staring at the same four walls. He can't wait to be financially independant again too. I just hope his health holds outand he doesn't end up suffering with the Hep again. He did say today he's more aware now that he has to take extra good care of his body..plenty of water, decent sleep, light exercise, a very healthy diet and no alcohol.
It was my birthday on Saturday, I had a small glass of Cava to celebrate, no idea what to do with the rest of the bottle though! I think my partners biggest test this year will be next month at our first music "alldayer" of the year. If he can get through that without drinking or just having a couple of pints I'll know he's going to be alright.
If you saw ads on here recently, I started using google adsense but they disabled my account today for using the word shit in my blog. I find that a little ridiculous but there ya go. I thought it might be a nice idea to earn a little bit of money as I blogged - every little helps as they say - perhaps I'll use an alternative or maybe just leave the whole ad thing alone...
My partner has been using a Hep C online support group quite a bit recently and he's finding it very beneficial. Another user of the group who's from the UK was telling him how they're taking part in a treatment trial at the moment so hopefully we can get some more info on that and see if Mr C can jump onboard something similar!
Time for an early night, so it's bye for now
Thursday, 16 February 2012
A Job Offer At Last!!
The neighbour popped round at lunchtime with some post which had been wrongly delivered to her house. Turns out Mr C has been offered a job!!! He's ecstatic, we were just on our way out for him to sign on at the job centre so hopefully today will be his last time signing on.
He is a bit worried that they might change their minds when they get all the forms back as one of them asked for an in depth medical history and he's had to make them aware of his Hep C as they'll be checking with the doctor. We'll know by next week if he can start, other than the health stuff it's all looking good and they were keen for him to start a.s.a.p.
Oh well, if they change their mind about him working there, he still has the interview on Monday to fall back on.
He is a bit worried that they might change their minds when they get all the forms back as one of them asked for an in depth medical history and he's had to make them aware of his Hep C as they'll be checking with the doctor. We'll know by next week if he can start, other than the health stuff it's all looking good and they were keen for him to start a.s.a.p.
Oh well, if they change their mind about him working there, he still has the interview on Monday to fall back on.
Aaargh, FLU!
I've been stuck in bed for a couple of days, suffering quite badly with flu. I normally have quite a good immune system and don't get ill often at all. I guess the recent stress I've been under has taken its tll on my rsistence to nasties! I tend to cook a lot so luckily there was plenty of leftover pasta bolognaise for the family to have for lunch. Dinner time was a Pot Noodle a piece which isn't exactly brilliant but they were happy enough!
My partner doesn't really know how to cook, otherwise I know he'd have taken over meal duties. He's spent most of his life living off takeaways and ready meals. Apparently he can make a pretty good curry, maybe I'll let him loose in the kitchen..on the proviso he doesn't use my Global knives or Le Creuset cookware (of which he's alreally broken one!). Luckily he's not fallen victim to the flu as he gets his yearly flu jab because of the Hep C, he's a bit chesty and tired so is fighting something off though.
Despite feeling crappy we're quite excited as he has a job interview on Monday and he says he's got a really good feeling about this one. I'm trying hard not to get too excited though as we've been here before - too many times - and I hate the disappointment. If he does get the job, it'll bring a whole new set of obstacles though. It's 12 hour shifts, 8pm-8am or 8am-8pm. That's going to take a lot out of him and not leave much time for us. But I guess he really needs to be out there doing something and getting some selfworth back. The extra money is desperately needed right now too. The cost of everything has rocketed the past few months - groceries, bills, fuel - it's insanely expensive just to keep a roof over your head, not to mention a car on the road
My partner doesn't really know how to cook, otherwise I know he'd have taken over meal duties. He's spent most of his life living off takeaways and ready meals. Apparently he can make a pretty good curry, maybe I'll let him loose in the kitchen..on the proviso he doesn't use my Global knives or Le Creuset cookware (of which he's alreally broken one!). Luckily he's not fallen victim to the flu as he gets his yearly flu jab because of the Hep C, he's a bit chesty and tired so is fighting something off though.
Despite feeling crappy we're quite excited as he has a job interview on Monday and he says he's got a really good feeling about this one. I'm trying hard not to get too excited though as we've been here before - too many times - and I hate the disappointment. If he does get the job, it'll bring a whole new set of obstacles though. It's 12 hour shifts, 8pm-8am or 8am-8pm. That's going to take a lot out of him and not leave much time for us. But I guess he really needs to be out there doing something and getting some selfworth back. The extra money is desperately needed right now too. The cost of everything has rocketed the past few months - groceries, bills, fuel - it's insanely expensive just to keep a roof over your head, not to mention a car on the road
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